Final delivery plan on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
Tabled 8 September 2025 by Tom Morrison
That this House welcomes the publication by the Department of Health and Social Care of the Final Delivery Plan on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and recognises the work of officials and the ME community in shaping the plan; notes with concern, that the plan falls short of delivering the meaningful change urgently needed by people with ME/CFS; further notes the absence of a strategic approach to ME research, including the omission of proposals for a dedicated ME research hub; expresses concern that much of the new funding cited, such as for the PRIME (Patients, Researchers and Industry for Myalgic Encephalomyelitis) project, was already secured through existing competitive processes; highlights the lack of sufficient accountability for implementing services and updating medical education in line with the NICE Guidelines on ME; regrets the limited attention given to severe ME and the absence of guarantees on specialist care provision; and calls on the Government to ensure robust accountability for its implementation, and provide the resources necessary to improve care, support and outcomes for people living with ME/CFS.
Signatories (58)
- Tom Morrison Sponsor
- Mr Will Forster
- Jess Brown-Fuller
- Jim Shannon
- Steve Darling
- Max Wilkinson
- Cat Smith
- Dr Roz Savage
- Sarah Dyke
- Monica Harding
- Clive Jones
- Andrew George
- Perran Moon
- Edward Morello
- Wendy Chamberlain
- Helen Maguire
- John Milne
- Vikki Slade
- Charlotte Cane
- Siân Berry
- Christine Jardine
- Brian Mathew
- Rachel Gilmour
- Mr Lee Dillon
- Helen Morgan
- Calum Miller
- Tom Gordon
- Manuela Perteghella
- Alex Easton
- Mr Angus MacDonald
- Shockat Adam
- Ian Roome
- Graham Leadbitter
- Liz Jarvis
- Ian Sollom
- Mr Paul Kohler
- Sarah Gibson
- Chris Law
- Wera Hobhouse
- Mr Joshua Reynolds
- Caroline Voaden
- Cameron Thomas
- Sorcha Eastwood
- Dr Ellie Chowns
- Munira Wilson
- Ben Lake
- Ann Davies
- Liz Saville Roberts
- Llinos Medi
- Pippa Heylings
- Freddie van Mierlo
- Zöe Franklin
- Marie Goldman
- Richard Foord
- Rachael Maskell
- Daisy Cooper
- James MacCleary
- Dr Al Pinkerton