That this House celebrates the 35th anniversary of the Harpenden-based Ataxia-Telangiectasia society, a charity dedicated to supporting families with AT, a rare and complex genetic disorder, through diagnosis, treatment and the challenges of everyday living; notes that the organisation was originally founded in 1989 by Maureen Poupard, with the help of Professor Malcolm Taylor; further notes the charity’s unique nature in providing both personal support to people with AT and funding research initiatives; highlights the success of its cooperative approach evidenced in the organisation of the world’s first ever conference on Clinical Science in AT, in 2004; commends the work of volunteers, researchers, and the team tirelessly advocating for people with AT; and fundamentally underlines that whilst 35 years is a real achievement, the charity does not want to have to exist but, nonetheless, will continue to fight for children, young people and their families until a cure is found.
